Still at CHLA

I can't really call this the "heart cath update" anymore. We're still in the hospital but it has nothing to do with his cath.

Santi had a really rough day yesterday. And last night was worse. He spiked a 102 fever. He was sweating profusely and he was completely inconsolable. The day nurses didn't do much. They gave him Tylenol and took his temperature. But didn't find the fever.

He was fussier than usual but napped and ate normally until 11pm when he woke up hysterical. The night shift took his temp 6 times just to make sure they were reading it right, yep, 102! We immediately tried to bring it down by cooling him off with cold towels and more Tylenol.

11pm-3:30am is all a blur. There was blood drawing, a catheter, IV's removed, IV's started, decreased sats, increased oxygen, lots of dirty diapers, about a million tears (from both of us) and certainly no sleeping. It was a nightmare. I'm sure all parents would agree that seeing your child suffer is the most horrible feeling. I'd trade places with him in an instant to make his suffering go away.

At this point they believe he has some type of gastrointestinal virus. We are waiting for blood and stool labs to come back and they've started antibiotics. He's also on Motrin and IV fluids. His sats have decreased to the 60's so he's now on 2 liters of oxygen. He was on .5 liter at home.

We are moving to CTICU in a few minutes. They will be able to put him on warm, high flow oxygen and watch him more closely.

When we came in Thursday morning for his cath I truly believed we'd be home by Friday afternoon. But I'm glad we didn't get discharged. Whatever he has was probably brewing before his cath and this would be even more stressful if it had surfaced at home and we had to bring him back thru the ER.

We'll probably be here for a few more days. I will keep you posted!